Battles against terminal illness, anxiety, and life!


Noticed skin discoloration on Braden’s face yesterday.  It’s those small physical manifestations of A-T that can knock the wind out of your sails.  It sobers you.  It turns an ordinary moment into one that holds too much hurt, longing, and anger.  Thankfully, the moment is fleeting as it feels much better to delight in his big silly smiles.  I remind myself to stay in the present…the here and now.


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