Raising a child with special needs is like you and your spouse being plunked into the middle of the ocean and being told to tread water until a life boat arrives. You can handle the fear of what could happen. You can still communicate and see each other, but you both have to work hard at staying afloat until that life boat arrives. So you never really get to connect because you are too busy trying to survive. However, eventually fatigue sets in and your muscles just can’t do it any longer. You have to do something or you will drown. That’s me today.
It may be “normal” in our house to have to clear an airway in one way or another, but that doesn’t mean it doesn’t cause an insane amount of stress. Sure I can take it in stride, but that stress has a way of building up to a breaking point. We have reached a point where there is nobody that is willing to watch our son out of fear. That simple fact is heartbreaking in itself. I understand that fear. I can’t say that I would want to take on that scary task either if the tables were turned. So, please do not misunderstand me. I am simply saying that we need to find a life boat. Not just any life boat but one that is skilled in this sort of journey.
If you know a nurse that is willing to be an occasional paid babysitter, please let us know. This is not directed at you Nurse Missy. We know you have two busy kids at home still!